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Related Links

The following is a partial list of websites that may be useful sources of information on topics related to Correlagen’s testing services. This list includes links to patient advocacy/support groups and will be updated regularly as we find additional sites that may be interesting. Please note that although these sites were chosen carefully, Correlagen cannot be responsible for the accuracy or reliability of the content on any of these sites.

 

 

Genetics, genetic diseases, and genetic testing

Genes and Diseases
A collection of on-line articles describing a broad range of genetic disorders.

Genetics Home Reference
A variety of genetics information, including a handbook covering basic genetics topics.

National Organization of Rare Disorders
Dedicated to providing advocacy and information for the rare "orphan" disease community, including some genetic diseases.

Talking Glossary of Genetic Terms
An on-line glossary of genetic terms and concepts written for the non-scientist.

Understanding Cancer Series
Slide shows on gene testing and molecular diagnostics, with a focus on cancer.

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Genetic Counseling

National Society of Genetic Counselors
Provides a variety of information for both patients and genetic counselors, including a link to assist patients in locating a genetic counselor.

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Clinical Trials

Clinical Trials.gov
Regularly updated information about clinical research in human volunteers. Search the site by gene name or syndrome name to find clinical trials related to a specific disorder.

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Familial Cardiology Disorders


Correlagen's disease reviews for patients and caregivers

Arrythmogenic Right Ventricular Dysplasia

Atrial Septal Defect with Atrioventricular Block

Dilated Cardiomyopathy

Familial Hypercholesterolemia/Early-Onset Coronary Heart Disease

Hypertrophic Cardiomyopathy

Loeys-Dietz Syndrome

Marfan Syndrome


Websites offering background information on the heart:

The Electric Heart (Nova on-line)
Information about the heart (including an animated map of the heart) and heart transplants.

The Heart: An On-line Exploration (The Franklin Institute: Resources for Science Learning)
Descriptions of the heart and how it works, as well as a historical perspective and information about heart health and nutrition.


Links to Patient Advocacy/Support Groups:

Children's Cardiomyopathy Foundation
Dedicated to accelerating research, improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy.

Hypertrophic Cardiomyopathy Association
Provides information, support, and advocacy for HCM patients, their families, and medical providers.

Loeys-Dietz Foundation
Provides information, support, and advocacy for HCM patients, their families, and medical providers.

National Marfan Foundation
Dedicated to saving lives and improving the quality of life for individuals and families affected by the Marfan syndrome.

Noonan's Syndrome Support Group
Provides support and information to those affected by Noonan Syndrome

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Primary Immunodeficiencies

Testing for these indications now occurs at a different LabCorp site. Please contact the testing site's client services at 800-345-4363 for more information.

Correlagen's disease reviews for patients and caregivers

Primary Immunodeficiencies


Websites offering background information on the immune system:

Understanding Cancer Series: The Immune System
This site offers a slide show providing a broad overview of how the immune system functions, as well as information on various immune disorders.


Links to Patient Advocacy/Support Groups:

The Jeffrey Modell Foundation
Dedicated to advocating for early diagnosis and research into treatments and cures for primary immunodeficiencies. See also http://www.info4pi.org/

The Immune Deficiency Foundation
Dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education.

CGD Research Trust
Provides research funding as well as support and information for families with Chronic Granulomatous Disease.

XLP Research Trust
Provides support for families affected by XLP, raises awareness, and promotes and funds research into X-linked Lymphoproliferative Disease.

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Familial Kidney Disorders

Testing for these indications now occurs at a different LabCorp site. Please contact the testing site's client services at 800-345-4363 for more information.

Links to Patient Advocacy/Support Groups:

The Kidney Cancer Association
Provides education, patient advocacy, and research funding around kidney cancer.

The VHL Family Alliance
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.

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Familial Ophthalmology Disorders

Testing for these indications now occurs at a different LabCorp site. Please contact the testing site's client services at 800-345-4363 for more information.

Correlagen's disease reviews for patients and caregivers

von Hippel-Lindau Disease


Links to Patient Advocacy/Support Groups:

The BBS Support Group
Offers information on BBS as well as a support network for families affected by BBS.

The VHL Family Alliance
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.

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