The following is a partial list of websites that may be useful sources of information on topics related to Correlagen’s testing services. This list includes links to patient advocacy/support groups and will be updated regularly as we find additional sites that may be interesting. Please note that although these sites were chosen carefully, Correlagen cannot be responsible for the accuracy or reliability of the content on any of these sites.
Clinical Trials
Clinical Trials.gov
Regularly updated information about clinical research in human volunteers. Search the site by gene name or syndrome name to find clinical trials related to a specific disorder.
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Familial Cardiology Disorders
Correlagen's disease reviews for patients and caregivers
Atrial Septal Defect with Atrioventricular Block
Dilated Cardiomyopathy
Early-Onset Coronary Heart Disease
Hypertrophic Cardiomyopathy
Marfan Syndrome
Links to Organizations Offering Group Heart-Screening Programs:
Heart Screen America
Websites offering background information on the heart:
The Electric Heart (Nova on-line)
Information about the heart (including an animated map of the heart) and heart transplants.
The Heart: An On-line Exploration (The Franklin Institute: Resources for Science Learning)
Descriptions of the heart and how it works, as well as a historical perspective and information about heart health and nutrition.
Links to Patient Advocacy/Support Groups:
Cardiac Arrhythmias Research and Education (C.A.R.E) Foundation
Working to prevent sudden cardiac death due to acquired and heritable heart rhythm disorders by advocating for research, education, and support for at-risk individuals and their families.
Children's Cardiomyopathy Foundation
Dedicated to accelerating research, improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy.
Hypertrophic Cardiomyopathy Association
Provides information, support, and advocacy for HCM patients, their families, and medical providers.
National Marfan Foundation
Dedicated to saving lives and improving the quality of life for individuals and families affected by the Marfan syndrome.
Noonan's Syndrome Support Group
Provides support and information to those affected by Noonan Syndrome
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Familial Endocrinology Disorders
Websites offering background information on endocrinology
Endotext.org
Provides expert written reviews on endocrine diseases.
Links to Patient Advocacy/Support Groups:
The BBS Support Group
Provides information on BBS as well as a support network for families affected by BBS.
CARES Foundation
Provides support for education and research on Congenital Adrenal Hyperplasia as well as resources and the latest information available for managing life with CAH.
The Noonan's Syndrome Support Group
Provides support and information to those affected by Noonan Syndrome.
The VHL Family Alliance
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.
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Familial Kidney Disorders
Links to Patient Advocacy/Support Groups:
The Kidney Cancer Association
Provides education, patient advocacy, and research funding around kidney cancer.
The VHL Family Alliance
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.
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Familial Ophthalmology Disorders
Correlagen's disease reviews for patients and caregivers
von Hippel-Lindau Disease
Links to Patient Advocacy/Support Groups:
The BBS Support Group
Offers information on BBS as well as a support network for families affected by BBS.
The VHL Family Alliance
Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.
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